GOING HOME TOMORROW

We were told this morning that we get to go home tomorrow! I am excited but terrified at the same time. I am really concerned still about her heart. The surgeon said he thought he got everything "fixed" but by looking at the echo her valve is still leaking. UGH! The docs say it's not abig deal, but with what Trinity has been through already 2 surgeries in 12 hours, i would expect it to be fixed! Yeah right.. I know he is only human. She is recovering great.And as happy as ever. Her heart rate is still pretty low when she sleeps. I am having to teach her how to suck again and that is very frustrating for me and her! She was on the feeding tube for8 weeks and would NOT take a passy, so.. we are going home with the feeding tube until she learns again, but her it is almost time for solids. She is also going to be on some blood pressure medicine, so they heart won't have to work as hard, they said they do not want that leak ripping. We had a nurse the other day and she had the nerve to pick her up under the arms!! I freaked and told her never to do that again! She is done with her morphine withdrawls so i am very happy about that, it was really hard seeing my 5 month old having to go through that. HUGS!